Trying
Saturday, October 31, 2020
Trying
Wednesday, October 28, 2020
Yesterday
Yesterday was the 12th anniversary of the accident and Loughlin's death. I stayed busy most of the day. I couldn't get enough courage to go to the cemetery. I still feel like I am in denial about Harlen dying. Today has been long and hard. Tomorrow is 2 months. Wow! I miss him so much. Harvest is coming to an end and he would be home more now any other year, but there is no sound of his voice. The fog is thickening and I am having a hard time seeing his messages, hearing his heart. Oh God. The holidays are gong to be hell. I heard a friend worrying about Christmas pictures already. I am worried about cooking food and washing clothes. I am sad.................
Friday, October 9, 2020
Another Day
I feel like I accomplished something today. I paid all the late bills. I talked to the painters, My boys helped me install a new fridge and I put my beautiful baby grandson to sleep. Julie brought up spaghetti for dinner. It's still nice to have meals brought in once in a while.
Wednesday, October 7, 2020
Please comment
I haven't been checking my comments for s long time, but i would love to hear your input.
Signs Signs everywhere there are signs.
Sunday, October 4, 2020
Lonely
Lonely but not alone.
Intelligent but not all known
Crazy but not insane
Guilty but who’s to blame?
Sad but still alive,
Shallow dare not to dive.
This life a dream, but a nightmare.
Take another jump don’t be scared.
Hope is a reason to live.
Charity a need to give.
Family is everything that is love.
Looking for guidance from above.
Saturday, October 3, 2020
One
It's funny at the end no one is around.
The house is empty. Nothing makes a sound.
Friday, October 2, 2020
cures
Do you know heartache triggers actual physical pain? It's a crazy thought that the two things this world cannot cure is cancer and heartache.
Both of these have affected my life in the last oh 32 years, perhaps before. My grief is causing physical pain, but people judge you like you are giving up of that you should miraculously just wakeup one day and feel the elephant who is resided on your chest for years is gone? It doesn't work that way, just like cancer can't be wished to go away.
I watched a movie tonight that's whole pretense, is our lives are what we make it. If we want a pony we will get a pony. If we want to be an astronaut boom you are one, of course with a lot of hard work. I started thinking about my life and how when bad things happened, which they did frequently I worked hard to get back in the game, but these trials are getting harder and I am getting exhausted. Any words of wisdom out there in cyberspace? I don't want to feel like this and I don't want to take a bunch of pills and walk around like a zombie.
Thursday, October 1, 2020
The journey
One month out and I still await Harlen's return at night. Nothing feels right. I am so tired all of the time. My shoulders feel like they are carrying the weight of the world, literally. My memory is shot. My cognitive skills are not so great either. i fell last Saturday and tore the cartilage in my ribs which makes laughing, hard and crying even harder. I knew this was going to be hard, but I underestimated the grief. I miss him so very much. The death certificates came in the mail today, 5 just in case I needed that many. Tomorrow could be a better day. I hope it is
Friday, September 11, 2020
Book
Oh they crawl around stealing the hours I need to sleep.
on the ceiling, their claws make wretched scratches
but the light shows no sign? Am I losing my mind?
I hear a heartbeat that abruptly comes to a halt.
Heartbeats beat strong until they don't beat at all.
I have been at the end of the rhythm thrice.
The pain is unbearable. Can you see me?
Wait there is a new smell, a happy smell, that of dust and moisture.
Taking me back to the time when life was simple.
I am a child riding in the back of dad's Rivera.
The music is playing a happy song. Is that the Beach boys? Does it Matter?
I am happy.
I shall not be that way very often.throughout my life.
I will not allow myself.
Remember that yellow VW I drove around town getting in trouble?
That was years after that man touched me underwater.
Leaving me scarred, filthy, unclean.
A child, yet now a tarnished soul.
I am in pain. Can you hear me?
Of course not for I am silent.
Wine 'coolers for free.
They are not that much older than me and Mer.
What could go wrong? I drink way too much.
Crawl to the bedroom just to lie down, head spinning.
Wake up to a crushing weight on top of me.
My virtue is stolen. I feel dead.
Of course no one listens to the girl who was impregnated at 17.
The fingers point in my direction.
I tell myself I don't care.
I was alone.
By choice, but alone.
A beautiful baby girl arrived.
2weeks pass full of bliss and love
I decide I can do it
I am alone. but not by choice
Yet I have this little beautiful baby girl.
She sleeps next to me
She dies next to me in my bed, cold, blood.
It's my honeymoon.
He makes me feel so low.
I shudder at my image.
I am alone again.
Years pass.
A baby boy arrives.
You can't get off the track.
A new baby boy, another lil boy, then that special girl.
Life seems sublime.
What is over the horizon?
A bigger baby boy and our surprise girl.
Is this happiness?
We are late for school.
I have a funeral to be to.
I drive down the hill. The sun blinds me.
My oldest son is cold, brain matter spills out on the seat.
What have I done?
A Loving God?
The ocean, so blue, with its crashing waves.
It is my solace. It is my proof of His existence or is it?
I am relaxed with the family.
My soul still lingers for something more.
Tears fall from my eyes.
Can this be true?
I am 50. My life is ugly again. There is no light.
He lays in the cold ground.
He fought. We fought. We lost. The cancer won.
Breathing is almost impossible.
I feel like a stranger in a strange place.
I am in pain can you here me?
Thursday, September 10, 2020
Harlen is gone
The sun is setting in the West with a tinge of red and orange in a sorrowful way. The fires are blazing on the West Coast . The fires are destroying my sacred ground. The place where we go to escape, but why not? God has taken what is most precious to me and has left me on charred ground. I wish this life was over. I need Harlen. I ache all over like I have a cruel case of the flu. I see him struggling for his last breath and I want to save him, but the insurance companies and hospital administrators have taken him from me. The stages of grief switch throughout the day. I am mostly sad, not just sad, but heartbroken. I cry most of the day. I like to sleep. In fact I love to sleep. Nightmares haunt my dreams but at least it isn't 18 hours of yearning. I knew he was going to die but did it have to be so fast? I love you Harlen. I will for a lifetime and more.
Saturday, May 23, 2020
What can I do?
The new bone marrow biopsy came back with double the amount of leukemia cells in the marrow than when Harlen started. It was devastating news. He started a new chemo on Wednesday. We have it and a trial drug left. It is hard not to be negative. I wish there was something I could do to change this. Harlen is getting tired. He is only 52. His life has so much more to live. We have so many plans for the future. Alaska with the boys, Europe with me, Grandchildren. It just isn't fair. So many prayers on his behalf have been said. We have to have good news soon. Please God let us keep him here on Earth.
Friday, April 17, 2020
20% Chance of Rain
Monday, March 30, 2020
Realizing I have always been a loner
Sunday, March 29, 2020
Hello from the Inside
I am writing from the self made bunker of the Huntsman Center in SLC, Utah. Harlen's last biopsy came back dirty with leukemia so we are once again trying a new chemotherapy for 3 weeks and because of the Corona Virus I had to make the decision to stay here or leave. Well they told me I had to leave but I prayed that they would make an exception for us because I had barely left his side in 5 weeks. The word came from the top that I was one of 3 that could stay. I was relieved, but knew it was going to be hard to stay away from my kids and grand baby for another 8 weeks. It wasn't a question though to leave Harlen by himself. We are in this together. So my agoraphobia had finely paid dividends. I didn't want to leave Harlen so I didn't and because I had stayed with him for 2 weeks straight; They let me stay. Today is day #3 of 21. I took a nap and the day was somewhat shorter. I was shaken from my sleep by another nightmare of loved ones dying and me breaking down. But I snapped out of it quickly without any meds to help me. I am getting stronger. I miss my kids fiercely. I always put my priorities on a scale. Harlen tops that scale right now, but that doesn't mean it doesn't hurt like hell to be away from my kids, especially with the uncertainty in this world. I pray frequently for all my loved ones, and I hope we can overcome the boredom of living in a hospital room knowing the boogeyman lurks outside and inside our minds and this world.
Wednesday, March 11, 2020
Agoraphobia
Friday, February 28, 2020
Migraines
I know I have talked about my migraines in the past, but I am having a bad one today, yesterday, the day before and most debilitating tonight. It is 1:30 am. this is way past my bedtime. I can't afford to have one right now. I am Harlen's caretaker. What if they think I cannot do this. He has to have a caregiver 24/7 after the transplant. Am I up for this task? I miss home. I miss the kids and my grandson. I miss my life before cancer. I almost have forgotten what that life was like then. Then I feel guilty for feeling crappy when Harlen is in the fight of his life. What kind of wife am I? You have to step up I keep telling myself. This is his. I can't keep raining on his torrential downpour. I watch him sleep and imagine what a horrible life it would be without him. He is sick. Sometimes he is really sick, but he is sick all of the time. Cancer sucks! Funny how people only think of cancer when it affects their circle. "You know that guy down the road with all those kids? He has cancer." or "She is only 35. How come she is dealing with this?" or even "Did you hear about Joe? He died last night with his family all around." How long do you think of these people fighting this horrible disease? How many times in a day do you wonder if they are going to make it? It never leaves my mind. Just like Rhiannon and Loughlin never leave my mind. Maybe the migraine is caused from lack of space in my brain.
I am rambling tonight I know, but I am 6 hrs away from the only Dr. I trust and I am miserable.
I went to do a batch of laundry. Crazy I know, but I can't sleep and I can't watch Harlen sleep anymore. Too many thoughts are in my mind and I don't like any of them.
Sunday, February 16, 2020
The Bull Sale - Harlen
Tuesday, February 11, 2020
Banished
Sunday, February 9, 2020
The Sweetest Gift on Earth
What can I say? Being a Grammy is the greatest thing on Earth. I thought that having my own kids, each of them was the greatest event to happen in my life. All seven of them were completely amazing, but on January 24th, 2020 our little August was born. He was a whopping 8lbs 14oz. He made it into this world via c-section. It was such a beautiful and sacred experience to be in the room with McKayla while she labored, The heavens felt like they had opened and the spirits were all around. We love this new little grandson more than anything in the world. He is the brightest spot in our universe.
He is now 2 weeks old and he is so beautiful and sweet. Like Frank on Everybody Loves Raymond I just breathe in life. I love him.
Tuesday, January 21, 2020
God only asked Noah for 40 days and 40 nights
Today is day 34 in the hospital. I am exhausted. I just wrapped Harlen's PICC line so he could shower. I am not a nurse. I have never wanted to be a nurse. I never cared to know what a PICC line is or what it does. He has a port too. It's in the right side of his chest. It is for blood or platelets or poison or whatever the hell they want to put in him. We were so excited for a clean bone marrow biopsy, but now his numbers won't come up and the Dr. today gave us little hope on what they could do next. Did I mention I am tired?
On top of it all we are trying from 70 miles away to compose the bull sale catalog. It is virtually impossible. My mind is so cloudy from stress and anxiety that I am having a hard time remembering numbers from one source to get to the other source. It is a long process on a normal year and takes most of my energy. I am sucking at it.
Harlen is down. He is talking like he is planning for an end result that I cannot put my head around. I can't think through this. I can't imagine a life without him in it, but if his numbers don't come up there isn't much more they can do for him. UGH The words came out of my mouth. My God it is your turn to step in. I know you aren't accustom to being told what to do, but I am tired of asking. I am tired of pleading. I need the father of my children in my life, in their life. I need a happy ending. I need what is left in my family to stay in this family.Was cancer your idea? Because I have to tell you if it was it blows.
There is hope and then it is crushed, then there is hope, but it is squashed, then there is real hope, but it was just pretend, then there really is hope, but it never was hope. It was just words, and words are empty and hollow and ugly.
I still have hope the Dr.'s are wrong because seriously when have they been right?
Tuesday, January 7, 2020
Bone Marrow came back Clean
Friday, December 27, 2019
Why not me?
I am the opposite, and I am sure that people are whispering the question across the sphere. Why not her? She has made so many awful choices and mistakes in life. You're right it should be me. It should have always been me.11 years ago it should have been me. Hell 31 years ago it should have been me.Why can't it be me?
28th Anniversary
Tuesday, December 24, 2019
Christmas Poem 2019
It will be a St. Luke's Christmas, Anniversary, New Year's, Birthday
It's Christmas Eve and we are in St. Luke's hospital, well Harlen and me. Wednesday we went for his appointment at MSTI and his white cells were through the sky. They admitted us to the hospital and we just thought it would be for a couple of days, but after tests it was revealed Harlen's CMML had turned into AML ( Acute Myeloid Leukemia. This is a fast acting, aggressive cancer. We were informed we would spend the next 5 weeks in the hospital to try chemotherapy to put the cancer into remission. Then and only then would we be able to move to the Huntsman Center for a Stem Cell Transplant. Today is day 4 of the chemo regiment. We have seen Harlen's white cells as high as 169,000, but his results this morning were hopeful. They are down to 22,690. His red cells and platelets will continue to fall also through this process, but they can be replenished with transfusions. We are praying for good numbers throughout this stay and remission.
The kids took the initiative and got at least kid family pictures done. Maya has been a steam roller setting up 2 fundraisers for Harlen. She really is a sweetheart. She was very successful. All the time she was deep in her studies to become a teacher. Cyrus is half way through his Master's program and He and McKayla are only 2 weeks from having our first grand baby. We are excited beyond words. True has stepped up and is taking Harlen's place on the farm. He and Katlyn worked tirelessly through harvest. Giles is still a senior in high school and has the coolest car and cutest girlfriend there. He loves to push my buttons, but we love him just the same. Lea finished a great volleyball season. She was the varsity setter and earned the Bulldog award, Honorable Mention all district, Scholar athlete, and a 4.0. Wow. We hope they are courageous through this long process and can keep up with their good works. I want to share a few of our pictures.
Saturday, December 7, 2019
It's Not You It's Me
We took Loughlin;s name through the temple last week. It was special with a lot of friends celebrating the moment with us. I think the medicine I am on is making me hard and without emotion, but rather that than where I have been.
Christmas is close and I am not ready, but I am never ready. Procrastination is my middle name.
Thursday, October 3, 2019
We have a Match
The Stem Cell Transplant Team at St. Luke's found two donors for Harlen and the transplant will be in 4-5 weeks. I am feeling blessed and overwhelmed but also scared and hesitant at the same time. Please pray for a positive outcome. We now need to find a place to live in the Boise area for 3 months.
I would encourage all of my readers to go to the Be The Match website and become a donor if you are under 45. If not donate blood. Harlen needs transfusions weekly. You could be the one who saves a life. Thank you in advance.
https://bethematch.org/
Tuesday, October 1, 2019
Paralyzed
Today I am paralyzed. I am sure most of you believe that I am not being literal, but I am. It is amazing what the mind can do to the body. I have a headache. It's pretty excruciating. I took my normal regiment of Excedrin and Promethezine, but it is hanging on if not just by its fingertips. My mind wants to do so many things, like clean the house, fix the holes in my walls, make my yard look like someone lives here, but my body is paralyzed. It is like I am glued to this brown recliner in my living room in which I have come to hate. I feel so heavy that moving is almost impossible. You say I am just lazy, but you don't feel what I feel.
Harlen has been suffering from stress related ills since his diagnosis. For the last three days it has been his back. He is suffering from muscle spasms and I am afraid of leaving him alone. I used to get this pain all of the time and know it will go away when he quits worrying and relaxes, but that is easier said than done. He is in the hands of people he doesn't know. People who are trained to cure him, but if they don't win it is just a game to them. They don't have a stake in this fight. As long as they get paid they will feel that their job has been completed.
I find comfort in prayer lately, but today I could pray all day and not feel at ease. God find a match for Harlen. Life is short enough.
Friday, September 20, 2019
A Full Life
In the meantime, Lea won Sophomore Homecoming Princess. Thank God the coronation and Parade was on Wednesday this year. We were lucky enough to enjoy with her celebrating her crowning. She was so cute. Here are two videos and a very cute photo. Tonight Cyrus filled in for Harlen to walk Lea out on the football field. It was so sweet. Susan Schulthies and Teniele helped us facetime the event so we could watch it from the hospital room. I can't wait for the video.
https://www.facebook.com/harlenkendalee.garner/videos/2737556759590802/?t=6
https://www.facebook.com/harlenkendalee.garner/videos/2738101159536362/?t=2
Thursday was also Loughlin's 26th birthday. We haven't been able to celebrate yet, but hopefully soon. Life seems to have a way of getting in the front of traditions sometimes. Happy Birthday Loughlin. We love you so much and miss you everyday. Life will never be the same without you.
Sunday, September 15, 2019
His Fight My Light
We had a week of spectacular events. We returned to the temple on Thursday for the first time in eleven years together. The peace that Elder McCune blessed our family with is holing us up. I feel my Savior again. I am not going to say this is an easy feat, because every moment the darkness wants to creep in, wants to make me feel unworthy, unloved, defeated, but I am trying to stay in the light. I try to remember the words spoken to me; God loves me. He wants the best for me. I am not being punished. Things just happen. So many other important words that hold me up when I want to get down. I have a family that loves me and I need to be strong for Harlen. He needs me. I need to get busy and get this house clean. I need to repaint the bathroom because it has mold and Harlen cannot be around it. In the last 11 years I have not done much, just what was needed. I pray for the strength to get past myself and get it done.
Sunday, September 8, 2019
Am I Ready?
Rhiannon's birth dad was killed in an airplane crash on Wednesday. Kenneth was just 50 with 4 children and a loving wife that need him. How is this part of a plan?
After my recommend interview I was engulfed in ugliness. I was angry and shaking and scared wondering if I had done the right thing. It passed with Harlen by my side. There is peace in our home again. Peace in my heart. I am hopeful Harlen will make it through this. the odds mean nothing.
Tuesday, September 3, 2019
My day with a Seventy
But on Sunday a member of the Seventy came to visit our family. Everyone came to church. Cyrus, McKayla, True, Katlyn, Maya, Juve, Giles and Lea. Elder McCune came to talk to our family. He asked first if anyone had any questions. Harlen about bruised my ribs trying to get me to talk. I asked my prodding question that lingers in my mind for years. If there was a loving Heavenly Father that actually cared about us here on Earth, whether I was being punished for my bad choices, I was really asking if God knew me. He spent 35 minutes of his hour with us addressing my question. the spirit was divine in that room and I felt like the Savior was there. He told me God loves me, that I have a huge heart and that it is Satan putting the doubts in my mind and my heart, blaming me for my children's death, beating myself up, making me feel unworthy of being loved. Satan is still working on me as I write down my experience. I have been so low that I thought I would never feel the warmth of the Son again. I hated myself for so many years. He told me none of this was true and Christ's atonement made it possible for me to feel his love again. I felt a peace that was lacking for most of my life.
He then gave Harlen a blessing promising that he would see his grandbabies, plural. We have a different spirit in our home now. It is peaceful. It is hopeful. There is unconditional love for we all know #FamilyIsEverything .
Chronic Myelomonocytic Leukemia (CMML)
Monday, June 24, 2019
The enjoyment of a debilitating panic attack
Not really. There is no joy in panic attacks. In fact you think you are dying and maybe you will one day. Of course you will one day, die. but a panic attack feels like you are dying right then. Your chest hurts. Your neck stiffens. You have shortness of breath and are dizzy. Your lips and fingertips, even your feet are tingling. Wait those are the symptoms of a heart attack. Could I be having a heart attack? I am fat and completely out of shape. Questions like these make you panic more. Should I go to the Dr and get that same pandering pat on the back? Or will that only make you feel worse and kind of like a loser, which will add to the panic because your husband says he doesn't think you're a loser, but your extremities are numb for no fucking reason. YOU are a loser. Are you also crazy? You lost your balance going to pee and hit your head on the bathtub, but you are only dizzy because you are crazy, right? Why are you panicking he may or you may ask? How should I know? It could be the fact that you drove to Portland and back in 2 days for a softball camp that lasted until 6:30 pm, then there was an accident on the freeway and the sirens and lights make you think are we next? You still have a six hour drive. But this is insane? Driving until 2am is also insane, 3 days of complete insanity. A double shot in my arse again, but not for a real ailment like a migraine, but only because you feel like you are dying. You leave the Dr.'s office and you are stoned, and you are tired, but hey you are not in a total panic, but then the drugs wear off and you are once again panicked. How many Valiums can you take and still respond to human contact? If you take too many then you are in a panic you will run out before the end of the month. WTF! Where are the answers to my questions?
Monday, June 10, 2019
Sunday, June 2, 2019
31 years later and my worst nightmare since Rhiannon's death
Fahrenheit 451
"Listen," said Granger, taking his arm, and walking with him, holding aside the
bushes to let him pass. "When I was a boy my grandfather died, and he was a
sculptor. He was also a very kind man who had a lot of love to give the world, and he helped clean up the slum in our town; and he made toys for us and he did a million things in his lifetime; he was always busy with his hands. And when he died, I suddenly realized I wasn't crying for him at all, but for the things he did. I cried because he would never do them again, he would never carve another piece of wood or help us raise doves and pigeons in the back yard or play the violin the way he did, or tell us jokes the way he did. He was part of us and when he died, all the actions stopped dead and there was no one to do them just the way he did. He was individual. He was an important man. I've never gotten over his death. Often I think, what wonderful carvings never came to birth because he died. How many jokes are missing from the world, and how many homing pigeons untouched by his hands. He shaped the world. He did things to the world. The world was bankrupted of ten million
fine actions the night he passed on." Ray Bradbury
Sunday, April 28, 2019
Depression
Today was the 1st time in a long time I just wanted to die. I have been alone way too much lately, too much time to think.
Sunday, April 14, 2019
Growing Older
Wednesday, April 3, 2019
Mirrors
Lea had a varsity game that we were on our way to. I was already in a mood. Lea didn't get to play. She was heartbroken. She cried. Lea never cries. She cried all the way home. She cried when we got home. She wrapped up in her comforter on her bed and cried. I went in and laid by her and cried with her. I hope it isn't how this year goes. I hope it gets better. Lea is a fantastic baller. She earned a spot on that team. I lived through 4 years of this with True. I am getting too old for the politics of this shit. I am tired. I love my baby girl. How do I sit back and watch another coach break my baby?
I got my new 10mm out and shot it for a while. I need the practice. True's going to come teach me how to be a better shot. I love that gun. Best Birthday present ever.
Tuesday, April 2, 2019
Today I just need an ear to listen.....I am not looking for you to fix me. Happy birthday Giles!
It's Giles's 17th birthday today. Another milestone in this family, and I can choose whether this milestone pulls me further into the abyss or I can celebrate that we all made it this far. I love this kid. He is amazing. He gets treated horribly by authority figures because of his hair and his inability to cow tow to the bullshit that attacks him. He is so strong, yet he loves to be told how proud you are of him. He treats with respect those who deserve it, but certainly is smart enough to ascertain those who don't. He is hilarious and plays the worst music in the world, but he loves it, and I love it when he smiles. He has experienced 2 more years than Loughlin did. 17 more years than Rhiannon did. There is the stone that sinks me further. I think I will just float on my back and rest a while. The deep can wait.
Thursday, March 14, 2019
Spring but not really
Giles and Lea started baseball and softball games yesterday. I watched from the car because I had just had a shot for my migraines. Giles pitched great 5 out of the 7 innings. His team just falling short of a victory. Lea is a freshman trying to play in the big leagues. Maybe she will play today. Giles is in Nyssa at 5pm and Lea in Notus at 5pm. I wish I could be in both places at the same time. Never enough of me.
It's still cold, perfect balling weather.
Friday, February 8, 2019
Inner
Spirits are cooing.
Haunting my thoughts.
The have and have nots.
The silence is deafening.
Choking and threatening.
Where am I?Who am I? Am I really alive? Open my eyes. I can't drive.
You think you know how I feel, but you don't. You say open up, but I won't.
I'm alone in my mind.
I'm one of a kind.
Another day passes by.
All I can do is just try.
Monday, January 14, 2019
Neverending Roller Coaster
My dad is turning 80 in February. He fell today and broke his pelvic/hip bone. I am stuck here feeling guilty because it is sale time and I am knee deep in our bull sale catalog. Life never seems to slow down. I am sooooo tired.