Showing posts with label BeTheMatch. Show all posts
Showing posts with label BeTheMatch. Show all posts

Tuesday, January 21, 2020

God only asked Noah for 40 days and 40 nights





Today is day 34 in the hospital. I am exhausted. I just wrapped Harlen's PICC line so he could shower. I am not a nurse. I have never wanted to be a nurse. I never cared to know what a PICC line is or what it does. He has a port too. It's in the right side of his chest. It is for blood or platelets or poison or whatever the hell they want to put in him. We were so excited for a clean bone marrow biopsy, but now his numbers won't come up and the Dr. today gave us little hope on what they could do next. Did I mention I am tired?

On top of it all we are trying from 70 miles away to compose the bull sale catalog. It is virtually impossible. My mind is so cloudy from stress and anxiety that I am having a hard time remembering numbers from one source to get to the other source. It is a long process on a normal year and takes most of my energy. I am sucking at it.

Harlen is down. He is talking like he is planning for an end result that I cannot put my head around. I can't think through this. I can't imagine a life without him in it, but if his numbers don't come up there isn't much more they can do for him. UGH The words came out of my mouth. My God it is your turn to step in. I know you aren't accustom to being told what to do, but I am tired of asking. I am tired of pleading. I need the father of my children in my life, in their life. I need a happy ending. I need what is left in my family to stay in this family.Was cancer your idea? Because I have to tell you if it was it blows.

There is hope and then it is crushed, then there is hope, but it is squashed, then there is real hope, but it was just pretend, then there really is hope, but it never was hope. It was just words, and words are empty and hollow and ugly.

I still have hope the Dr.'s are wrong because seriously when have they been right?


I believe I would rather have 2 of every species living amongst me.

Tuesday, January 7, 2020

Bone Marrow came back Clean

Harlen's bone marrow came back clean of all cancer in his last biopsy. We are still in the hospital and will be until his good cells start doing their job. Then we are off to Utah for the stem cell transplant that should have been done back in November. But the great news is we have more hope with each passing day. He is still having hard days with fevers, aches and chills, but they are lessening which is a good sign.

Friday, December 27, 2019

Tuesday, December 24, 2019

It will be a St. Luke's Christmas, Anniversary, New Year's, Birthday



It's Christmas Eve and we are in St. Luke's hospital, well Harlen and me. Wednesday we went for his appointment at MSTI and his white cells were through the sky. They admitted us to the hospital and we just thought it would be for a couple of days, but after tests it was revealed Harlen's CMML had turned into AML ( Acute Myeloid Leukemia. This is a fast acting, aggressive cancer. We were informed we would spend the next 5 weeks in the hospital to try chemotherapy to put the cancer into remission. Then and only then would we be able to move to the Huntsman Center for a Stem Cell Transplant. Today is day 4 of the chemo regiment. We have seen Harlen's white cells as high as 169,000, but his results this morning were hopeful. They are down to 22,690. His red cells and platelets will continue to fall also through this process, but they can be replenished with transfusions. We are praying for good numbers throughout this stay and remission.

The kids took the initiative and got at least kid family pictures done. Maya has been a steam roller setting up 2 fundraisers for Harlen. She really is a sweetheart. She was very successful. All the time she was deep in her studies to become a teacher. Cyrus is half way through his Master's program and He and McKayla are only 2 weeks from having our first grand baby. We are excited beyond words. True has stepped up and is taking Harlen's place on the farm. He and Katlyn worked tirelessly through harvest. Giles is still a senior in high school and has the coolest car and cutest girlfriend there. He loves to push my buttons, but we love him just the same. Lea finished a great volleyball season. She was the varsity setter and earned the Bulldog award, Honorable Mention all district,  Scholar athlete, and a 4.0. Wow. We hope they are courageous through this long process and can keep up with their good works. I want to share a few of our pictures.












Thursday, October 3, 2019

We have a Match



The Stem Cell Transplant Team at St. Luke's found two donors for Harlen and the transplant will be in 4-5 weeks. I am feeling blessed and overwhelmed but also scared and hesitant at the same time. Please pray for a positive outcome. We now need to find a place to live in the Boise area for 3 months.

I would encourage all of my readers to go to the Be The Match website and become a donor if you are under 45. If not donate blood. Harlen needs transfusions weekly. You could be the one who saves a life. Thank you in advance.

https://bethematch.org/